Welcome and Opening Remarks

Amy Gutmann, Ph.D.
Commission Chair

James Wagner, Ph.D.
Commission Vice-Chair

Session 1: How Technology is Changing Views of Privacy

Latanya Sweeney, Ph.D.
Visiting Professor and Scholar, Computer Science Director, Data Privacy Lab, Harvard University

Sonia Suter, M.S., J.D.
Professor of Law, George Washington University

Session 2: Protection of Private and Public Genomic Databases

Ken Chahine, Ph.D., J.D.
Senior Vice President and General Manager, Ancestry DNA, LLC

Laura Lyman Rodriguez, Ph.D.
Director, Office of Policy, Communications, and Education, National Human Genome Research Institute

Session 3: Consent and Return of Findings

Bartha Knoppers, Ph.D.
Director, Centre of Genomics and Policy, Canada Research Chair in Law and Medicine, McGill University

Session 4: Roundtable Discussion

Session 5: Member Discussion of Recommendations
Session 6: Member Discussion of Recommendations

Opening Remarks - Day 2

Amy Gutmann, Ph.D.
James Wagner, Ph.D.

Session 7: Member Discussion of Recommendations

Session 8: Assessing Pediatric Research: Considering Individual Risk and Societal Benefit

David Resnik, J.D., Ph.D.
Bioethicist and IRB Chair, National Institute for Environmental Health Sciences, National Institutes of Health

Neal Halsey, M.D.
Professor of International Health, Johns Hopkins Bloomberg School of Public Health, Professor and Pediatric Infectious Disease Physician, Department of Pediatrics, Johns Hopkins School of Medicine

Ruth Berkelman, M.D.
Rollins Professor and Director, Center for Public Health Preparedness and Research, Emory University

Session 9: National-level Review of Pediatric Research

David Wendler, M.A., Ph.D.
Head, Unit on Vulnerable Populations, Department of Bioethics, NIH Clinical Center

Session 10: Scientific, Medical, and Public Health Information to Facilitate Decision-Making for Pediatric Research on Medical Countermeasures

Paul B. Thompson, Ph.D.
W.K. Kellogg Professor of Agricultural, Food and Community Ethics, Professor of Philosophy, Professor of Agricultural, Food and Resource Economics, Professor of Community, Agriculture, Recreation and Resource Studies, Michigan State University

Richard Gorman, M.D.
Head, Pediatric and Obstetrics Integrated Program Team, HHS Office of the Assistant Secretary for Preparedness and Response, Associate Director for Clinical Research, Division of Microbiology and Infectious Disease, National Institute of Allergy and Infectious Diseases

Thomas A. Moore, M.D., F.A.C.P.
Chairman, Department of Infectious Diseases, Ochsner Health System, (Serves as Chair, FDA Anti-Infective Drug Advisory Committee)

Session 11: Roundtable Discussion

Concluding Remarks Amy Gutmann, Ph.D. James Wagner, Ph.D.