Welcome and Opening Remarks
Amy Gutmann, Ph.D.
Commission Chair
James Wagner, Ph.D.
Commission Vice-Chair |
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Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic
Retta Beery
Mother of twins who benefitted from improved diagnosis gained by whole genome sequencing
Richard Gibbs, Ph.D.
Wofford Cain Professor, Department of Molecular and Human Genetics, Director, Human Genome Sequencing Center, Baylor College of Medicine
Daniel Masys, M.D.
Affiliate Professor, Biomedical and Health Informatics, University of Washington School of Medicine |
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Session 2: Privacy I – Privacy and the Public Good
George Annas, J.D., M.P.H.
Chair, Health Law, Bioethics & Human Rights, William Fairfield Warren Distinguished Professor, Boston University School of Public Health
Mark A. Rothstein, J.D.
Herbert F. Boehl Chair of Law and Medicine, University of Louisville School of Medicine |
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Session 3: Privacy II – Control, Access and Human Genome Sequence Data
Jane Kaye, D.Phil., L.L.B.
Director of the Centre for Law, Health and Emerging Technologies (HeLEX), Oxford University
John Wilbanks
Founder, Consent to Research, Senior Fellow, Kauffman Foundation, Research Fellow, Lybba |
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Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information
Melissa Mourges, J.D.
Assistant District Attorney, Chief, Forensic Sciences/Cold Case Unit, New York County District Attorney's Office
Pilar Ossorio, J.D., Ph.D.
Associate Professor of Law and Bioethics, University of Wisconsin-Madison |
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Session 5: Roundtable & Closing Remarks
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Opening Remarks
Amy Gutmann, Ph.D.
James Wagner, Ph.D |
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Session 6: Notions of Self
John Perry, Ph.D.
Emeritus Professor of Philosophy, Stanford University, Distinguished Professor of Philosophy, University of California, Riverside
Marya Schechtman, Ph.D.
Professor of Philosophy, University of Illinois at Chicago |
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Session 7: Research Update and Clinical Considerations
Bernard Lo, M.D.
Professor of Medicine, Director, Program in Medical Ethics, University of California, San Francisco
Anthony Wagner, Ph.D.
Professor of Psychology and Neuroscience, Stanford University |
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Session 8: Roundtable and Concluding Remarks
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