MEETING EIGHT: Feb. 2-3, 2012, in San Francisco, Cal.
 
 
 
 

Welcome and Opening Remarks

Welcome and Opening Remarks

Amy Gutmann, Ph.D.
Commission Chair

James Wagner, Ph.D.
Commission Vice-Chair

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Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic

Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic

Retta Beery
Mother of twins who benefitted from improved diagnosis gained by whole genome sequencing

Richard Gibbs, Ph.D.
Wofford Cain Professor, Department of Molecular and Human Genetics, Director, Human Genome Sequencing Center, Baylor College of Medicine

Daniel Masys, M.D.
Affiliate Professor, Biomedical and Health Informatics, University of Washington School of Medicine

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Session 2: Privacy I – Privacy and the Public Good

Session 2: Privacy I – Privacy and the Public Good

George Annas, J.D., M.P.H.
Chair, Health Law, Bioethics & Human Rights, William Fairfield Warren Distinguished Professor, Boston University School of Public Health

Mark A. Rothstein, J.D.
Herbert F. Boehl Chair of Law and Medicine, University of Louisville School of Medicine

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Session 3: Privacy II – Control, Access and Human Genome Sequence Data

Session 3: Privacy II – Control, Access and Human Genome Sequence Data

Jane Kaye, D.Phil., L.L.B.
Director of the Centre for Law, Health and Emerging Technologies (HeLEX), Oxford University

John Wilbanks
Founder, Consent to Research, Senior Fellow, Kauffman Foundation, Research Fellow, Lybba

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Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information

Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information

Melissa Mourges, J.D.
Assistant District Attorney, Chief, Forensic Sciences/Cold Case Unit, New York County District Attorney's Office

Pilar Ossorio, J.D., Ph.D.
Associate Professor of Law and Bioethics, University of Wisconsin-Madison

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Session 5: Roundtable & Closing Remarks

Session 5: Roundtable & Closing Remarks

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Opening Remarks

Opening Remarks

Amy Gutmann, Ph.D.
James Wagner, Ph.D

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Session 6: Notions of Self

Session 6: Notions of Self

John Perry, Ph.D.
Emeritus Professor of Philosophy, Stanford University, Distinguished Professor of Philosophy, University of California, Riverside

Marya Schechtman, Ph.D.
Professor of Philosophy, University of Illinois at Chicago

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Session 7: Research Update and Clinical Considerations

Session 7: Research Update and Clinical Considerations

Bernard Lo, M.D.
Professor of Medicine, Director, Program in Medical Ethics, University of California, San Francisco

Anthony Wagner, Ph.D.
Professor of Psychology and Neuroscience, Stanford University

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Session 8: Roundtable and Concluding Remarks

Session 8: Roundtable and Concluding Remarks

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